hrp0092p1-125 | Sex Differentiation, Gonads and Gynaecology or Sex Endocrinology | ESPE2019

A Health-Related Quality of Life Tool for Parents of Young Children With Disorders of Sex Development

Ali Salma , Macqueen Zoe , Gardner Melissa , Sandberg David , Kyriakou Andreas , Mason Avril , Shaikh M. Guftar , Wong Sze Choong , Ahmed S. Faisal

Background: Disorders of sex development (DSD) may be associated with adverse psychosocial and psychosexual outcomes in adults. However, there is a paucity of information on health-related quality of life outcomes in parents and young children with DSD.Objective: To evaluate the use of parent-reported outcome (PRO) questionnaires that can be routinely used in the outpatient setting to assess the impact of DSD on parents ...